Stakeholder Links

The United Kingdom Haemophilia Centre Doctors’ Organisation

The United Kingdom Haemophilia Centre Doctor’s Organisation is an association of medical practitioners who work within the Haemophilia Centre’s of England, Scotland, Northern Ireland and Wales, and have an interest in the care of people with Haemophilia or other bleeding disorders.

The Primary Immunodeficiency Association

British Transplantation Society

British Society for Paediatric and Adolescent Rheumatology

The British Association of Dermatologists

The Royal College of Paediatrics and Child Health

The ITP Support Association

The ITP Support Association is a UK registered charity which aims to promote and improve the general welfare of patients, and the families of patients, with Immune Thrombocytopenia (formerly known as Immune (Idiopathic) Thrombocytopenic Purpura).

Association of British Neurologists

British Society for Rheumatology

The Association of Clinical Pathologists

The Royal College of Pathologists

The College aims to advance the science and practice of pathology, by furthering public education, and promoting research in pathology and to disseminate the results.

British Society for Haematology

The objectives of the Society are to advance the practice and study of haematology and to facilitate contact between persons interested in haematology.


Baxalta focuses on assisting people with some of the most complex conditions – for example: haemophilia; cancer; immune disorders and kidney disease. Expertise is applied in medical devices, pharmaceuticals and biotechnology to make a meaningful difference in patient’s lives.

Bio Products Laboratory

Bio Products Laboratory Ltd manufactures a wide range of plasma products. Located in Elstree, near London (UK), they are committed to research and development to maintain a key position in a constantly changing market in the 21st century.


Grifols is a group of companies, which serves healthcare professionals and patients in over 90 countries around the world. They research, develop, manufacture and market plasma derivatives, IV therapy, enteral nutrition, diagnostic systems and medical materials.

Intensive Care Society

The Intensive Care Society is the representative body in the UK for intensive care professionals and patients. The Society is dedicated to the delivery of the highest quality of critical care to patients in the UK. They perform many functions for the intensive care community in the UK such as the production of guidelines and standards, stage national meetings, training courses and focus groups. They represent Intensive Care in wide ranging organisations from the Royal Colleges to the Department of Health and other organisations and societies with a stake or interest in intensive care. They are also represented on the Intercollegiate Board for Training in Intensive Care.

UK Primary Immunodeficiency Network

The UK Primary Immunodeficiency Network (UKPIN) is a multidisciplinary organisation of those caring for patients with primary immunodeficiencies. UKPIN aims to share methods of best practice, and to accredit immunology centres which practice in this way.

The Royal College of Ophthalmologists

The College is the guardian of excellence in the practice of ophthalmology. They champion quality in the care delivered to patients, through the setting of professional standards and through education and training.

British Association of Perinatal Medicine

Their aim is to support newborn babies and their families by providing services that help all those involved in perinatal practice to improve the standards of perinatal care in the British Isles.

Royal College of Physicians

They are a professional body, representing over 20,000 physicians, that aims to improve the quality of patient care by continually raising medical standards.

Kawasaki Syndrome Support Group

The Kawasaki Syndrome Support Group is a group of families who have firsthand knowledge of Kawasaki and have set up a National Support Group. Kawasaki Syndrome is an acute childhood illness which can affect many systems of the body. They offer support and understanding and, where possible, linking up of local families. For information and a listening ear, please contact them via Sue Davidson.

British Society for Antimicrobial Chemotherapy

Our aim is to improve the prevention, and treatment of infectious disease, and promote the appropriate and effective use of antimicrobial agents through education, research, promoting evidence based practice, audit and quality improvement measures, and engagement with people and organisations.

CSL Behring UK

CSL Behring is committed to improving the quality of life for people with rare and serious diseases, worldwide.

Canadian (British Columbia) IVIg Utlilization Management Program

The British Columbia IVIG Utilization Management Handbook, published in 2002, is made up of three documents:

    1. Overview and Program Operation: Includes Foreword, Chapters 1 through 5 (background about IVIG supply and cost, IVIG utilization in BC and adverse reactions to IVIG, as well as a guide to utilization management program development and operation) and the Appendix (categorization of medical conditions)
    1. Immunology, Hematology and Neurology: Includes Chapters 6 through 11 (monographs on the efficacy of IVIG in immunology, hematology and neurology)
    1. Rheumatology, Dermatology, Obstetrics/Gynecology, Infectious Diseases: Includes Chapters 12 through 16 (monographs on the efficacy of IVIG in rheumatology, dermatology, obstetrics/gynecology, infectious diseases)